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Motor Neurone Disease Association
David Niven House
10-15 Notre Dame Mews

Tel: 01604 250505

Fax: 01604 624726/638289


Tel: 0808 802 6262

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Did you know you don't have to go through a solicitor to make a Lasting Power of Attorney? It costs just £82 to do it yourself and register with the Office of the Public Guardian. Ask your local community support centre for more details.

           Regional Conference's 2019  

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MNDA REGISTER The information will help plan the care for people living with MND and tell researchers more about what might be causing the disease. For example, counting every person with MND allows us to work out the number of people diagnosed with MND per year, how many people currently have the disease and how this is changing with time. Information such as gender and ethnicity can be used to look for characteristics of people more likely to develop MND, click here for more details. 

Sandra Smith Says

I was patient carer on MND NICE Guideline Group. I can answer questions on what good care you should expect and receive , any advice or help I am here for everyone.

You can contact Sandra on Facebook Here or Twitter Here

                       And Many More

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                             > > > CLICK HERE FOR LOTS MORE CLIPS < < < 

                                                 For All Our M.N.D. Angels

                                   Katherine Jenkins Jealous Of The Angels

Zoe Ball raises awareness of MND after losing her beloved stepfather to the disease in 2012

               Radio presenter Jeremy Vine becomes latest Patron 2017

DIFFERENT TYPES OF MND takes several forms. For some people, the symptoms are widespread from the onset. However MND usually begins by affecting a single limb or aspect of motor function, becoming more generalised as the disease progresses. There is usually evidence of wasting and weakness in some muscles and fasciculation (twitching) of parts of the muscle may be visible under the skin. Fasciculation may be a sign of damage to LMN. There are many other causes of fasciculation, some less serious. Involvement of UMN results in stiffness of muscles (spasticity) and slowed movements.

People may have only LMN or UMN signs early in the illness but typically develop a combination of the two as the disease progresses.

The disease can be classified into four main types depending on the pattern of motor neurone involvement and the part of the body where the symptoms begin.

1. Amyotrophic lateral sclerosis (ALS)

  • both upper and lower motor neurones are affected
  • limb muscle weakness and wasting

ALS is the most common type, characterised by muscle weakness and stiffness, over-active reflexes and, in some cases, rapidly changing emotions. Initially the limbs cease to work properly. The muscles of speech, swallowing and breathing are usually also later affected. ALS is the term commonly applied to MND in many parts of the world.

2. Progressive bulbar palsy (PBP)

  • both upper and lower motor neurones are affected
  • speech and swallowing muscle weakness and wasting

When ALS begins in the muscles of speech and swallowing it is designated PBP. PBP, mixed bulbar palsy and pseudo-bulbar palsy involve the muscles of speech and swallowing. The nerves that control these functions are located in the bulb (the lower part of the brain), hence the term bulbar palsy (paralysis). The limb muscles may also later be affected.

3. Progressive muscular atrophy (PMA)

  • lower motor neurones are affected
  • slower rates of progression and significantly longer survival compared to ALS and PBP

PMA is characterised initially by lower motor neurone signs resulting in more generalised muscle wasting and weakness, absent reflexes, loss of weight and muscle twitching. PMA can be the hardest form of MND to diagnose accurately. Recent studies indicate that many people diagnosed with PMA subsequently develop upper motor neurone signs. This would lead to a reclassification to ALS. PMA may begin in the arms (flail arm type) or the legs (flail leg type).

4. Primary lateral sclerosis (PLS)

  • upper motor neurones are affected
  • very rare and diagnosis is often provisional

What is Kennedy’s disease?

Kennedy’s disease is a disorder of motor neurones which is not motor neurone disease. It is an inherited disorder affecting adult males causing slowly progressive weakness and wasting of muscles with only lower motor neurone involvement and other features.

Stephen Hawking has been involved with the Association since it was founded in 1979. He is globally recognized as a theoretical physicist and cosmologist, but has also lived with MND since 1963, being diagnosed at the age of 21. Died on 14th  March 2018

Read More Of Their Story Here

Benedict Cumberbatch started supporting the Association after playing Stephen Hawking in a BBC drama called ‘Hawking’ in 2004.

He was made an ambassador in 2008, before becoming a Patron in 2015. 

In 2015 Eddie Redmayne won the Best Actor Oscar for his portrayal of Stephen Hawking in ‘The Theory Of Everything’, becoming a Patron in the same year.

Many people have asked the question if being active is something to do with contracting MND that seemed to be a bit of a grey area, so i started a poll that was active for six days back in May 2018, here are the results.

Eye Vision Problems

Some people have problems with their eyes and vision, this can be sensitive to sun light, also with the neck muscles becoming weakened the head becomes hard to keep up making it lean down or to one side causing the eyes to look upwards instead of straight ahead causing double vision as the left eye looks to the left and the right eyes looks to the right, Many people say MND dosn't affect the eyes when in fact it dose not but may affect the muscles of the eyes causing problems.

                                                                                                                                                                                                                                               These are my own findings.


PatientsLikeMe's 2018 Team of Advisors includes 13 members with a cross section of medical and professional backgrounds, ages and conditions. #HaveYourSay #YourQuestionsAnswered